Latest Research Jam Publications
See a full list of our publications on PubMed.
- by Swetha ParvataneniCONCLUSIONS: Pain, uncertainty about symptom severity, and lack of accessible real-time clinical support were major drivers of ED utilization in cirrhosis. Interventions addressing these specific needs may reduce avoidable ED use. These findings provide a patient-informed foundation for care delivery redesign in cirrhosis.
- by Sylk Sotto-SantiagoCONCLUSION: We recognize that BmRs are dedicated to health equity and addressing disparities. However, in addition to committing to "best practices," BmRs should prioritize actions that foster genuine trust from the communities they serve. More development opportunities are needed for reflection of what it means to be trusted by research volunteers and communities. Furthermore, intentions […]
- by Brittany J RitzmanWhile cancer has sustained impacts on survivors, no unified strategy exists to assess the ongoing needs of survivors. Adolescent and young adult (AYA) cancer survivors have unique needs and concerns related to their life stages, including education, career, relationships, and family planning, all of which may be impacted by cancer and its treatments. In this […]
- by Lauren D NephewCONCLUSIONS: While Black patients and those with adverse SDOH experience unique barriers, common threads-such as information gaps and desire for peer support suggest shared opportunities for interventions.
- by Sylk Sotto-SantiagoCONCLUSION: The utilization of tools to measure trust will facilitate participant recruitment and will assist institutions and investigators alike in accountability. It is imperative, we work toward understanding our communities' trust in medical research, assessing our own trustworthiness, and critically reflect on the authenticity of our efforts.
- by Sarah E WieheCONCLUSIONS: We utilize community engagement to expand the scope of our research and find that the process provides value to both consultants and the research team. Human-centered design enhances this partnership by keeping it person-centered, developing empathy and trust between consultants and researchers, increasing consultant retention, and empowering consultants to collaborate meaningfully with the research […]
- by Sarah E WieheCONCLUSIONS: We utilized community engagement to expand the scope of our research and found that the process provided value to both stakeholders and research team members. Human-centered design enhanced this partnership by keeping it person-centered, developing empathy and trust, increasing stakeholder retention, and empowering stakeholders to collaborate meaningfully with the research team. The use of […]
- by Charlene BrownCONCLUSIONS: Our study provides a hypospadias PROM that is ready for psychometric assessment in a larger sample.
- by Amey SalviCONCLUSIONS: The Indiana touchpoints dashboard is the first to display real-time visualizations that link administrative and overdose mortality data across the state. This resource equips local health officials and OFRs with timely, quantitative, and spatiotemporal insights into overdose risk factors in their communities, facilitating data-driven interventions and policy changes. However, fully integrating the dashboard into […]
- by Sylk Sotto-SantiagoCONCLUSION: By understanding motivations, we understand needs. This information can be used for other advisory boards, as well as recruitment into research participation and health care advocacy.