Latest Research Jam Publications

See a full list on PubMed.

• Unlocking Success: Community Engagement for Enhanced HIV Care Outcomes
  November 1, 2024 by Sarah E Wiehe
  Background: Though social determinants are the primary drivers of health, few studies of people living with HIV (PLWH) focus on non-clinical correlates of insecure and/or fragmented connections with the care system. Our team has used linked clinical and multisector non-clinical data to study how residential mobility and connection to social services influence the HIV care […]
• Development of a prototype of a patient-reported outcomes measure for hypospadias care, the Patient Assessment Tool for Hypospadias (PATH)
  August 17, 2024 by Charlene Brown
  CONCLUSIONS: Our study provides a hypospadias PROM that is ready for psychometric assessment in a larger sample.
• Development of a Real-Time Dashboard for Overdose Touchpoints: User-Centered Design Approach
  June 11, 2024 by Amey Salvi
  CONCLUSIONS: The Indiana touchpoints dashboard is the first to display real-time visualizations that link administrative and overdose mortality data across the state. This resource equips local health officials and OFRs with timely, quantitative, and spatiotemporal insights into overdose risk factors in their communities, facilitating data-driven interventions and policy changes. However, fully integrating the dashboard into […]
• "I Am Interested!": The Voices of the Community and Their Participation in Health Advisory Boards
  January 22, 2024 by Sylk Sotto-Santiago
  CONCLUSION: By understanding motivations, we understand needs. This information can be used for other advisory boards, as well as recruitment into research participation and health care advocacy.
• Human-centered designed communication tools for obesity prevention in early life
  August 11, 2023 by Erika R Cheng
  CONCLUSIONS: Our hands-on, collaborative approach may ultimately improve uptake, acceptability and usability of early life obesity interventions by ensuring that parents remain at the center of prevention efforts.
• Development of a Family-Centered Communication Tool for Kidney Health in Premature Infants: Qualitative Focus Group Study Using Human-Centered Design Methodology
  July 10, 2023 by Michelle C Starr
  CONCLUSIONS: Caregivers of premature infants are open to communication about kidney health during their neonatal admission. The next phase of this work will translate caregivers' preferences into family-centered communication tools and test their efficacy in the neonatal intensive care unit.
• Building a prototype of a continence goal-selection tool for children with spina bifida: Patient, parental and urology provider recommendations
  March 31, 2023 by Konrad M Szymanski
  CONCLUSIONS: Children with SB and parents preferred an app to help them set and track continence goals. All stakeholders, including urology providers, offered complementary and mutually reinforcing feedback to guide the creation of an app prototype that would ultimately be integrated into a clinic visit.
• "Research Jam": Engaging patients and other stakeholders through human-centered design to improve translational research
  February 9, 2023 by Sarah E Wiehe
  Effective stakeholder engagement increases research relevance and utility. Though published principles of community-based participatory research and patient-centered outcomes research offer guidance, few resources offer effective techniques to engage stakeholders and translate their engagement into improvements in research process and outcomes. The Indiana Clinical and Translational Sciences Institute (Indiana CTSI) is home to Research Jam (RJ), […]
• Identifying Patient-Centered Outcomes for Caregivers and Children With Musculoskeletal Infections
  January 19, 2023 by James B Wood
  CONCLUSIONS: Management of children with MSKI is complex and requires a multidisciplinary team approach. Validation of the outcomes identified and development of a measurement tool are needed. Addressing the patient-centered outcomes we identified in this study can greatly improve the holistic care of children with MSKI.
• A human-centered designed outreach strategy for a youth contraception navigator program
  December 21, 2022 by Tracey A Wilkinson
  CONCLUSIONS: A name (IN Control) and key elements of an outreach strategy were determined for the navigator program. It is important to work with key stakeholders and co-design the optimal strategy and messages to assure that the intended audience is reached, and the desired behavior change is achieved.